Daisy was born with a rare genetic Birth Defect. Adams Oliver Syndrome. As a mum, I share our lives in this blog. Thanks for your support.
Mortality statistics
Update of statistics, ummm, not great!
http://www.ncbi.nlm.nih.gov/m/pubmed/7991097/?i=23&from=/3975293/related
Hearing aids
Daisy has now got hearing aids. Not something I was looking forward too. Since her fitting, and seeing Daisys face when she first put them in , I realised it was the best thing ever. I was so touched and emotional when Daisy heard the birds singing. I asked if she had heard them before , sadly she hadnt. Just pleased now she cn heard the small things we all take for granted. So proud of her ....
Daisy safe room
Sorry, i havent blogged here for ages.. Basically ive put all my time and energy into raising enough funds to build daisy her very own room. So now, here she is with her toy hover, tidying her new safe space.
I will post picture of fund raising events and the process of the building work in due corse. Its a shame the 'services' couldnt provide what was adviced by daisys doctors. Luckerly the support from everyone involved has been amazing and i will be thanking everyone personaly. But finally for now i can nip to the loo, make a tea, even chat with my other children...knowing daisy is safe in her room. ... I can breath ... Xx
I will post picture of fund raising events and the process of the building work in due corse. Its a shame the 'services' couldnt provide what was adviced by daisys doctors. Luckerly the support from everyone involved has been amazing and i will be thanking everyone personaly. But finally for now i can nip to the loo, make a tea, even chat with my other children...knowing daisy is safe in her room. ... I can breath ... Xx
Building!
We can let go of a great big release of tention. I am pleased to say that we are now in the pisition to make a deposite for the works needed to build her safe room!! We still need to raise more but its so great to get the ball rolling. Work should start this month. !!!
Any volenteers needed, clear area, dig footings, tidy up, build. What ever your skills may be message me with your details if you would like to lend a hand. Thanks
Charity Giving - Kerry Ogston's Fundraising Page
Not long now and I will be tackling the 3 peaks mountains, the biggest in the UK. Raising funds and awareness for Daisy and Adams Oliver syndrome.
Please follow the link to donate
Thanks xxxxx
Donate (How too)
Please donate with the DONATE tab link above
Thank you
Thank you
Shame the OT assessing us at home ignored Doctors recomendations , and then misplaced the documents stating the Doctors advice!! Due to this Im having to fund raise to keep Daisy safe, and follow Doctors orders!!
3 peaks
Training, Great time in the gym again with Lorna in the new life styles for living studio. We had a tough hour of 1-2-1 and .... boy am I starting to feel and see the difference!
I've lost 3lbs, COM'OM!!
I would never of trained like this without the 1-2-1 support from Lorna, all the diets and gym membership charges are a complete waist of money. If I new how much it would help to have these 1-2-1's I wish I did this years ago ...stupid fad diets...never again xx
I've lost 3lbs, COM'OM!!
I would never of trained like this without the 1-2-1 support from Lorna, all the diets and gym membership charges are a complete waist of money. If I new how much it would help to have these 1-2-1's I wish I did this years ago ...stupid fad diets...never again xx
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