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Thankyou for your comments. Family and friends sharing information about there experience of AOS is always appreciated. I hope everyone ...

Daisy is 7 now. She is still amazing and so are her much ed loved brother and sister. Daisy has grown loads. She's as tall as her ...

An update on an news press article that I read online https://www.ncbi.nlm.nih.gov/m/pubmed/7991097/?i=23&from=/3975293/related  https...

Daisy's doing really well, still always smiling. Her head has skin over it now, still looks weak and still opens up sometimes, but onl...

I'm just me., Daisy. I wear a hat. I have Skull bone missing and sore skin. If you like my hat please don't walk on past witho...

Update of statistics, ummm, not great! http://www.ncbi.nlm.nih.gov/m/pubmed/7991097/?i=23&from=/3975293/related

Daisy has now got hearing aids. Not something I was looking forward too. Since her fitting, and seeing Daisys face when she first put them...