Update 2017

Daisy is 7 now.

She is still amazing and so are her much ed loved brother and sister.

Daisy has grown loads. She's as tall as her fellow class mates.
Educational she is progressing.

Daisy attends a special needs school. Her class is matched with other children that are at her level of learning.
Daisy is the only girl in her small class of 8 boys! Each child has there own curriculum of learning. Each child receive's tools and techniques that enables them to learn.
Daisy has developed so much since she started a statemented school.

She still talks and signs well to aid communication.
She is in many of the schools sports groups and teams.
Daisy has a fab Teacher and school support system. I'm really happy she came out of general mainstream.

Her head skull still has 3 different gaps where there is no skull bone at all.


An update on an news press article that I read online
https://www.ncbi.nlm.nih.gov/m/pubmed/7991097/?i=23&from=/3975293/related https://www.ncbi.nlm.nih.gov/m/pubmed/7991097/?i=23&from=/3975293/related