AOS and Comedy

http://www.katrinabrowncomedy.com/Katrina/Video.asp?page=Video

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A comedian who jokes she has a plate in her head, is short, and 1 tit bigger than the other..!!.

Katrina is diagnosised with Adams Oliver syndrom.

I'm  so please she contacted me, really positive lady x

Norfolk County Council lose private medical documents

 The kids school attendance are both poor. My house is cramped, over crowded and cluttered.
 We cant move as after the home option team assessed our family with consideration of Daisys medical needs they could not up our band. We are on low need banding.  The doctors stated and supported the view to adapt the current property rather that to move to a 4 bedroom, this would be more suited for daisys com plex additional needs!
  Daisys lost medical file has been lost by the original Norfolk County Council (Adults Services) Occupational Therapist. The LOST MEDICAL FILE contained all the data that Home options focused there assessment on. All the doctors letters and reports claimed Daisy needs her own room for safety reasons, to adapt the current property under the Disabled Facilities Grant would be far more safer , suitable and recommended in there medical professional opinion.
  The OT that LOST daisys medical file forgot to log the file, or take duplicates from the file, yet she managed to gather all daisys doctors addresses and names and contact details!!, amazing eh, The OT also fail to tell anyone she lost my daughters file, this file contained Daisys Birth certificate!!  I only know on reading it from the information my father obtained for me via freedom of information act.
WTF!!!

Harvest Festival

What a hot day today, celebrating Harvest festival at Izzy's school, with Home made soup, and fresh bread.  There we all sat on the field kids parents, teachers, sun shining.
  OOO poor Daisy gets hot and sweaty, and over heats in her helmet .........(she always wears it now when collecting the kids, as it gets hectic, more so as she wants to walk everywhere now!)  Id rather be safe than sorry here!
 ......... then sipping on my pumpkin soup, I see Daisy , sicking, like she had a pump in her belly , pumping it out, it didn't even touch her lips.... even as i carried her away she was at it, it was every where. I felt so bad all the kids and parents must of really enjoyed there soup after seeing that!
Thanks Daisy, I wouldn't have you any other way.  Great singing Izzy! and honest the soup was the best Ive tasted.xx 

Lost

The clock still ticks the doctors still state Daisy could never share a room, for risk of damaging her Brain or worse. The Skull still has a large area missing, I still carry her everywhere, and have to strap her in a buggy whilst I rush to the toilet, how inhumane, theres no-where safe upstairs for her, we sit in the living room with door shut whenever we are at home,its depressing and boring and very dark and lonely! My daughters not a dog.... But yet the council still haven't helped in anyway. I cant take the risk of moving to a bigger house when the doctors have warned me of the risks and insisted that they don't think it would be safe to move. They even put this in writing, yet Norwich city council state my daughter doesn't met there criteria for grant to adapt the home. A under 5year old child would only met there criteria in rare situations. I'm not sure what could be rarer??? it would be good if there could give me an example of this, but they cant. I think on a safety level, as in my daughter needs safety 24/7 or she will die, and the doctors are fully advising me not to move, the fact that she has a massive part of her skull missing would met there criteria in 'a rare situation'  they are neglecting my child's needs because it doesn't tick the forms boxes... hello, my daughter now wanting to walk has half a skull, and her brain is very precious, sort it out you bunch of paper shedding office, single, non parenting government tossers.
THIS IS A CHILD'S LIFE YOUR TALKING IN YOUR HANDS.
oh and thanks Mrs.mp or pm whatever you are, you didn't ring, and you didn't seem to follow anything up. thanks .

Start raising funds

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Daisys fun days...

Great Daisy and I have NEST today. Helmet packed,nappies pasked,wipes check,bottles check,Mark (aka Dad)CHECK!!, haha, hes going to love watching his daughter play. Hope he copes ok with the whole helmet thing??. He will Im sure, We love you Daddy marky xx
UPDATE....- same day- NEST was great fun, Alot less children today than the 1st time we went. Not sure if this is good or bad. It was nice to have space, but i love all the hussel and bussel,so does Daisy. Daisy had her protective helmet on,surrounded by loads of noisey,hard attractive toys,yet chewing her hand or various parts of toys seem more appealing.LOL. Mark cant wait till next time,haha, he was atcually really impressed, and even stayed for the songs at the end!! well done hun x
Looking forward to Friday as we are attending the wonderfull informative stress releaving workshop for parents, run via 2 parents who have put there Souls into helping other parent/carers that are in the zone! Its for parents/carers who have a child that needs. All these needs being conpletely different. As ive now been told a few times now.... We are a varied group of parents with children. All with completely different backgrounds,presents,and futures. We are here,didnt nesserserly want to be here. We all can all truly relate/and hear one another. Part of a group. Like it or lump it, we're a group. This may sound strange but, i must say Im proud i part of this. Dont get me wrong-I'd do anything for my child to be well,but in the same breath she is who she is, and I wouldnt want to change her. Yep theses kids are truly Special,in the most admirational way. Every parent/carer I have met so far is amazing,I have learnt so much,yet before my experience with Daisy I'll admit I was completly blind to the world beyound 'the average'(would use the word 'normal' as would the NHS, but im far from normal, so who am i to talk!!)