DERMOTOLOGY-Last week Daisy had the dermatologists at GOSH Great Ormond Street, the appointment went well, and they are pleased with the healing(Skin) that is continuing on Daisys head. We have been given Bactroban cream to apply. This is for Strep,Staph and E'coli. As Daisys head swabs have shown course to use cream. Still on Flucloxacillin(2x Daily)They referred us to Addenbrooke's Hospital for Genetic testing. I imaging the day I have to sit Daisy down and tell her the risks of her children having AOS, that's the easy bit, but to explain we don't know how this will effect her children- IE-missing limbs/Heart/kidney defect/Skull/Skin, each AOS child stain is completely different,this is the hard bit,i feel.
PEADIATRICION-Had appointment today at NNUH (Norfolk and Norwich Hospital) Doc is also pleased with Daisy. Daisy didn't tick all the 'normal' boxes for physical development IE-sitting,rolling,laughing, so going to review in few months. Physiotherapist and Occupational Therapist is due 30th November, also Nursery Nurse to advice on alternative play IE-safe soft toys,sensory play-lights/touch/hear etc, so that should be fun for the little Dotty Daisy.
Daisy was born with a rare genetic Birth Defect. Adams Oliver Syndrome. As a mum, I share our lives in this blog. Thanks for your support.
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