Rare Genectic Birth Defect, Adams-Oliver Syndrome (AOS).
Daisys Symptoms include ~
Large Cranium (Skull) and Scalp (Skin) defect.
Limb abnormalities mainly her Feet.
A Heart defect.
thank you Kerry for sharing this... Ther trigger op went fine, it really was NOTHING compared to ACC. Every day is a struggle but then, when after all, you see the improvements, all other problems seem so far away... I always come here to read about Daisy and you, I'm a regular reader :))
Love you Kerry and co xxxx
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