Here is my beautiful baby Dotty Daisy,she is only a day old.
The doctors and Nurses took her away for the first time,for chromosome tests,various other test,lumbar puncture,and these pictures. I wish id gone as well,it felt like they took her forever. I sat on the general maternity ward alone,none of the midwives where aware(fully) of what Daisy had or didn't have!. Daisy was born 37+2. Daisy wasn't put in NICO(Intense care),the nurse even popped a woolly hat on her!. Daisy was then Diagnosed with Adams-Oliver Syndrome roughly a day after Birth.
At this stage I was told there was no Skin approx 15x15cm on her head,There was a Defect of the Skull(scans will be arranged). There had been a unexplained rare occurrence in the early stages of pregnancy,coursing atomic banding of the feet(I think that's how its said?) Webbed toes, ends of the odd toe and nail missing,overlapping of the odd toe also. Daisy also had a 6mm hole in the Heat ASD. Pulmonary Arterial Sternosis(narrowing of the main Artery's) She later developed Apnea,meaning she can stop breathing at any time,we were shown how to resuscitate her at GOSH,Shes had 3 Big attacks there,one attack happened when my other 2 kiddies had came to London to visit Daisy and I. It was a really hard,lonely time for them. Thank you kiddy's for being so strong and brave,there was so much distance between us,but yet we were closer than ever....
|Daisy will always wear a Helmet,until surgery.|
Daises other foot